Affinity with Divinity..!!

affinity with divinity

There are many questions that baffles anyone including me… one being for all the difficulties/tensions/stress.. The quintessential “Why me? Those questions include the whole gamut of experiences within the mind and outside the mind.. within the body and from the universe as well.

Disability is a powerful tool to understand what’s lacking in your body and sometimes how mind can compensate what body is lacking. Whenever someone who sees me as “disabled child” and used to comment on Karma – the destiny , I used to get angry and felt so restless about the word “Karma”

Even when I am told that, everything has a purpose including the disability.. I never believed that ..feeling “ what the heck? Other than modifying everything for me including the quality of breath I take and my environment and living a compromised life ..what purpose would my disability have ?? “ I used to get tensed and pressured whenever someone says this. I always wonder at the presence of divine or miraculous things that has happened to me.

Let me explain some .. what all the things I have positive effect on :

Sleep:

I have started social service when I am in extreme pain and unable to sleep. I must thank my mentors My grandmother and my father who has advised me to do so. There were days and years I used to get nightmares of 22 surgeries that are performed on me and the extreme pain and medication side effects. I looked at walls, cried, wanted to die, sleep depravity and unable to focus. Slowly when I had started working, the pain has become manageable and I used to get thoughts of pending works, persons unable to reach and various other positive things. Then I handled positive stress of achieving or not able to achieve all my development goals. I wondered will I be able to sleepy fully.. these were days in the years 1996-2000. I challenged pain with positive work. Then tried to do it without attaching any value to me . ITS MOST IMPORTANT THAT , YOU FEEL HUMBLE DOING ANY WORK. HOWEVER SMALL AND BIG THEY MAY BE.. LIKE MOTHER TERESA SAYS- WE FORGOT WE BELONG TO EACH OTHER. MEANS.. I AM DOING THE WORK.. RATHER FECILITATING THE WORK THAT BELONGS TO THEM, AS I BELONG TO THEM..!

Yoga:

Still the physical perfection or support eluded me . trapped in a wheelchair.. how far you can go ? just moving your hands barely and go to your bathroom and live watching world helplessly.?? There were days when I am not even unable to type these mails or buckle strap of my pant or wear my dress. Then a Guru came in form of Shri Gangadhar Garu of vizianagaram, who taught me diligently for two years. He convinced the narcissistic me the power of posture despite severely operated and compromised spine. Those two to three years with yoga made me understand the power re-generation. A small stint with Ayurveda gave me enough strength and an acceptance that things may come to normal.

Giving:

Giving I have been doing since 20 years of my life as social entrepreneur. But Ram Sundher taught me giving selflessly and without any attachment or jealousy of the flow of events. I must thank him for that opportunity. In giving section, my husband Anand who is a pioneer for me regarding, alternative therapies made me understand many concepts. My spells of depression, anxiety over unfinished works and other insecurities dissolved. I never knew at that time , one after another the flow of negative energy that was expelled from you in form of miraculous pain and dissolving of pain as the way as it comes. With anand my side, in all my therapies and struggles with disability, we are a team.

Prophesy & Acceptance:

My mother used to dream of my walking, she used to have list of her wishful thinking about me. I said.. nah.. every mother feels the same way. Later Advocate and my senior Krishnakumar Bhagawathi, who prophesied about my marriage and walking and divinity.. I thought ..oh! he respects my struggle and love me like his own sister, so its natural. After that a mysterious Ayurveda doctor and astrologer who told me that, you need to walk to feel normal … I thought oh! Unable to move my feet an inch, he is expecting too much..!

I must thank them all … I was naïve and fool before nature and divine, which takes its own time.

Alternative Therapies and Letting go of things:

A brief stint with alternative therapies like acupuncture from Dr. Gopan, reiki made me understand the pain points and managing. Vipassana meditation chiseled my detachment and challenged me to work towards it. I am ever thankful to Sri John Hemanth Kumar garu for and Anand again for pushing a reluctant, talkative me into silencing my mind and focus on body. I forgot I once had sleep depravity and unclear vision about things. Diet given by Anand, and new braces is making the balance slow and steady

Ayurveda & Dr. Ravishankar:

I had the rare opportunity to meet and talk with Dr. Ravishankar , famous cardio vascular surgeon turned Ayurveda therapist and healer. I profusely thank Meenakshi, my soul sister and her guru Sri VV Ramana murthy garu for the opportunity. Before the consultation we all had a wonderful talk on various things. We may meet and greet people anywhere or somehow. But being able to meet them on a platform of minds where bodies dissolve , receiving the universal energy in the ambient home of Deputy Mayor Shri Dora Babu Garu is the silver lining of life’s learning cake.

What’s so special with Dr. Ravi Shanker? You might ask.. HIS SPECIALITY IS TO CONNECT THE DIVINE FORMULATION CUSTOMISED FOR YOU, TOWARDS YOUR AILMENTS. WHILE HE IS TALKING TO ME, I AM WONDERING MYSELF … AM I IMAGINING THINGS?

WHEN 5 YEARS BACK, ANAND TOLD ME THE SAME DREAM. SAME PATH. I FOLLOWED THAT, THE SAME PATH CAME TO ME IN AN ACCELERATED WAY WITH A MEDICINE, IN FORM OF DR. RAVI SHANKAR. I FOUND TRACE OF THE DIVINE MECHANISM BEHIND MY GROWTH AND CURE AND MOST IMPORTANTLY FEELING NEAR NORMAL.

I AM THANKFUL TO HIM IMMENCELY FOR ACCEPTING AND SHARPENING THE DESTINED DIVINITY WITH HIS AFFINITY TOWARDS HEALING AND WELLBEING OF MANKIND.

Everyone has Definite journey and divine task…. For every task, the readiness should be ready to execute that. Thank you for the vision of my compassionate companion.. Pragnanand , for making me to understand , subtlety of PRAGNA (WISDOM) FOR ANAND (HAPPINESS) … And a serenity to know the difference..!!

–Sai Padma

© Sai Padma :// IPR All Rights Reserved

HUMOURAM-Humor as Armor

Humouram

Its sometime around 2000, I am recovering from severe spinal cord surgery, bored , frustrated and obviously depressed. There were days when I didn’t move other than one time to washroom. It was a hell to me, to dependent on others all the time. My aunt one day challenged me that ,” you are saying what you cant do.. write to me what you can do..!” I started my list with ‘ I can read, write, watch movies, eat , etc..

Then I thought, there are many abilities in disabilities too.. and wanted to put my thoughts in form of an Article. Those times were early days of Internet in India, I was in remote village and worried about my bill. After finishing the article, I am too proud of it and wished to send somewhere, so I send to a website that first appeared about women. Surprisingly it got published and I got a remuneration rs. 500 . I am just like “hurray..!” . the article is titled “ Ability In Disability” and I received much praise for that.

After two months or so, I received a strange mail from a total stranger, by name Mr. Ram Sundher asking me about my welfare and a request. He says- he liked the article so much and he liked my coinage of word “Ability In Disability” and he wanted to use it for an NGO soon to be formed. I was delighted and said YES feeling someone liked my work. The friendship grew and he became my mentor. We are communicating through mails and occasional phone calls.

When in 2006, as part of my South India Disability Organizations tour, I hesitantly asked Ram , that “could he show me around in Bangalore? “ he, not only arranged everything in Bangalore and gave me leads on which NGOs to see and learn and the whole thing. It’s more than 10 workshops to me. I learned a lot. Lastly when he said , you know what .. the AID foundation after your article name .. do you remember that? .. I said yes, I remember that, then he said an astonishing fact ..Which I still can remember.. he said – “ the same AID foundation now employs more than 400 persons with disabilities in assembling and electrification works in Bangalore” .. I felt so elated and happy so calm at the same time.. that, what more I need as a writer and as a person who struggled for equal opportunities for persons with disabilities!

Over the years, our friendship grew to mentorship, right assistance in our social entrepreneurship work, Ram sings nostalgic and says …” hey we know each other too long.. “ . Together with Ram, Global AID has rose from strength to strength and working in several areas today.

What I learnt from Ram is a long list , but will try to summarize

  • · Humor is an armor to combat this life stress
  • · Social service is an extension of life’s cherished dreams. Do as much as you can and as long as you can.
  • · Graveyard makes you remember the impermanence of things. Visit that if you can and remember that in your mind if you can’t visit. It will make you understand what fun life is.
  • · There is no drama without trauma, just enjoy the drama.. don’t judge
  • · Be content with whatever little you do.
  • · Smile at victories.. laugh hard at failures
  • · Most of the people don’t want to associate with disability causes. You can make them associate by being yourself and being honest and frank.
  • · Not only the cause but also the journey.. focus on the journey too
  • · India and Indians are emotional but no one is a fool here. Have as much transparency as possible
  • · I never had big money. But I have big hearted friends. That’s enough to do the service and it’s the tension less pension
  • · Words are powerful. Make them your friends
  • · Compassion is every day’s job. Be compassionate to everyone, it should start from home
  • · Let go of people and projects you cant handle. You have not come here to DO IT ALL..!
  • · LIFE’S MAIN AIM IS TO BE HAPPY.. NOW THAT YOU HAVE HAPPY ( ANAND) .. FOCUS ON HAPPINESS AND HARMONY OF WORLD AROUND YOU.

The value of lessons I learnt from him .. I use on daily basis, in controlling my anger, frustration and depression.

ON HIS BIRTHDAY.. I HAVE ONLY WORDS TO GIVE HIM.. FOR ALL THE LOVE, EFFECTION AND RESPECT HE HAS GIVEN TO A WOMAN WHO IS CRAZY FOR SOCIAL WORK DESPITE SEVERE PHYSICAL DISABILITY.. HE TAUGHT ME TO SEE ME AS AN ASSET THAN A LIABILITY..!

HAVE A SUPER DUPER .. LAUGHING WALA BIRTHDAY RAM …. PAL PAL DIL KE PAAS ..AAP REHTHE HO..

–Sai Padma n Anand

( Written for my book on Indian Disability- Sharing on Ram’s Birthday)

© Sai Padma :// IPR  All Rights Reserved

Are You Balancing Work n Life Sai Padma ???

1012963_10153343307582160_3638047642883750852_n

I used to walk till I am 22 with twisted spine

I walked even though I had seven fractures and healing after that

I walked as if world is going to end and I wanted to be useful to people

A spinal surgery coupled with my tired limbs of polio

Stopped me in my tracks. Alas.. calipers..

I limited myself in a wheelchair.. No wrong in it..

When I tried to walk again @40, Life has as if spun a wheel of pain to me..

Extreme body and bone pain… severe fatigue…

Then Acupuncture helped to fight back pain

And Diet given by Anand eased my dependency on Medication completely..

ME AND ANAND ARE LEAVING TO USA FOR TWO MONTHS ON TWO IMPORTANT ASSIGNMENTS,

1. TO GET MYSELF ASSESSED FOR LIGHT WEIGHT CUSTOMIZED LEG BRACES AND 

2.TO MEET, NETWORK WITH ORGANISATIONS AND INDIVIDUALS WORKING FOR/WILLING TO WORK FOR EDUCATION, HEALTHCARE AND REHABILITATION OF THE UNDERPREVILEGED AND DISABLED IN INDIA! 

NOW I AM AGAIN GOING TO TAKE MAJOR LEAP IN REHABILITATION BY PLANNING TO TAKE AN ASSESSMENT FOR LIGHT WEIGHT LEG BRACES!!

I thought much before uploading this video… as It’s like putting my life and problems bare.. And further, many have suggested why you are clubbing both personal rehabilitation and Professional work of networking..

One answer for that.. I CANT AFFORD TO LEAVE EITHER OF THE FOCUSES! BECAUSE HELPING OTHERS HELPED MY HEALTH AS WELL… AS A PERSON

SECONDLY, AS A NON-PROFIT WORKER, I LIVE MORE OR LESS LIKE MY BENEFICIARIES AS WELL… I WANT TO CELEBRATE POLIO AND WISH TO REVERSE THE POST POLIO SYNDROME..!

CAN I AFFORD THE EXPENSIVE LEG BRACE… MAY BE NOT… OR MAY BE YES..!

BUT, I DON’T WANT TO DIE WITH A REGRET THAT I DIDN’T TRY… SO I AM GOING TO CELEBRATE THE DIFFICILTY IN A NEW WAY…

WISH ME GOOD LUCK… I AM PURPOSELY PUTTING UP THIS VIDEO FOR THE BENEFIT OF MANY!

EVERYONE CAN’T HAVE ALL… BUT EVERYONE CAN CHOOSE THE WAY TO TRY ALL!!

LOOING FORWARD TO MEET MANY FRIENDS DOWN THIS JOURNEY WHICH STARTS TOMORROW AND WE WILL LAND IN LOS ANGELES..!

KEEP ME IN YOUR PRAYERS.. AND I HOPE YOUR BEST WISHES WILL MAKE ME STRENGTHEN TO BALANCE WORK AND LIFE AND BE A SUCCESS!!

Because

The mediocre teacher tells. The good teacher explains. The superior teacher demonstrates. The great teacher inspires.
– William Arthur Ward –

I think I am in good teacher category aspiring for superior teacher post!

I will not be available online much.. but I will be available in your thoughts and check things. Anyone wish to contact me while in USA please inbox me your details..!

Thank you many friends.. who just wish and feel that I can walk and I can lead much more!!

Best

Sai Padma

Check this Video Link http://https://www.youtube.com/watch?v=lsmUcnfWIn0

John Sir & Vipassana

 

IMG_20140906_100115

I was a skeptic to many things in life.. especially stuff like meditation, because , fighting my pain on a daily basis is my meditation I used to say ..!

Two persons changed my view on this – One – Anand who did vipassana meditation and strictly followed many things and achieved a lot through that, but I was still hesitant to go for meditation… alas… not for people like me who are already grown up!

Two- John Sir- Mr. John Hemanth Kumar , a banker- turned- Montessori trainer- turned-vipassana teacher- turned -Child psychologist .. John sir journey is as exciting as any spiritual book that can alter our life, IF WE ARE KEEN ON READING TO UNDERSTAND AND PRACTICE IT..!

When he asked me to go to vipassana .. I just laughed on his face.. who ..me .. being somewhere all alone with some minimal help and on top of it.. ME WITHOUT TALKING ….!!!!!!!!

Well.. John sir don’t know me I thought… then after some coaxing I agreed to go. My mother said she will come with me and in the final moment , said she cant make it. I was frustrated and went alone , all the way cursing John sir ..for making the arrangements already, for convincing me that I should try , If I want to work on me !

The rest is history… as they say.. I went and did a 10 day vipassana course, On only one prayer that .. that I have to reduce my dependence on medications , pain medication or whatever medication.

Now, after 5 years vipassana and john sir has become synonymous to me …what I learned from both:

  •   It takes a lot of time , to quite our mind and even stop talking with our own self
  •   Every negative vibe, over ambition, effects us in many ways than we imagine
  •   Formulating life , and health – first expect less from the world
  •   Love without attachment – it is possible!
  •   Broaden your horizon of work .. chantings has effect on mind
  •   Scientific methodology of meditation can dispel pain and make you more understand the side effects of medication
  •   In case of emergency, keep your body ready for anything including the final friend ..Death
  •   Disability is best ability, as most of your energies are still needed to be used and focused in clusters
  • Do meditation .. then even death comes like a dear friend

I cant thank John sir ..for being part of my life.. .and sincerely feels and glad to understand that he is with me and supporting my work always..!

Thank you so so much John sir ..!

 

© Sai Padma :// IPR All Rights Reserved

Bunker Roy- Barefoot inspiration for Wheelchair woman

image

 

It was India Development Coalition of America convention on Sustainable Development and Gandhian Thought,

Venue: Loyola University, Chicago, IL, USA

Presenter: Sai Padma Murthy

Her Status: Nervous Wreck (first time presenting her work on an International Platform!)

Background: She is one of the speakers among Mr. Satish Kumar, UK, who is considered as Living Gandhi among Ecologists and Economists as well. Further, in the guest list there is Mr. Bunker Roy, for her .. He is like GOD .. !!

A simple bulky man with friendly smile came to me said… And came, “ Hi Sai Padma, I am Bunker Roy.. I have come to listen your presentation..!!”

Gosh.. My heart skipped and might go into an attack… I said “ sir.. err.. well..I work with communities, my work is very basic..I haven’t presented much!”

He smiled and said – “ well , we all wish to work and listen voices of villages na .. isn’t it ? I am glad they chose you to present ..!”

I don’t know what I have talked .. but I remembered he saying , that’s good , ask them , social work is not about at begging stand point its about rights of many… you got to be more powerful in expressing .. people who don’t know field .. cant talk ground realities.. ! well done!”

He made my day.. he made me understand , what’s being simple and BAREFOOT..!!

For friends who don’t know him yet. follow this link : http://en.wikipedia.org/wiki/Bunker_Roy

HAPPY BIRTHDAY BUNKER JI… YOU CEMENTED MY DECISION TO SPEND A LIFETIME IN SOCIAL WORK..HAPPY BIRTHDAY ..!!

~~ Excerpts from my Upcoming Book on Wheelchair Travels

© Sai Padma://IPR All Rights Reserved

Innocent All The Way…!!

 

1501129_225065944368230_3374082259694897443_o

Up for late though
Unkempt though
Ubiquitously yet slowly
drinking life to the last drop
Bamboo glass in hand
My veil to outward pollution
Which can wipe away my innocence
I know life can be tough
So I turn half towards life
Rest submerged in nature..!
They call me tribal
But, yes, Happiness is my tribe
May it increase outside
May it increase in everyone ..!!
–Sai Padma
Pic Courtesy: Jayati
( A tribal kid drinking water from bamboo pipe as glass from one of our hamlets where we work..!)

© Sai Padma :// IPR All Rights Reserved

Bryn’s Truth- Ruth

1798497_731177786912748_1878575221_n

I always wonder at the strength of some people.. When I feel empty they fill me up with their energy and unconditional love, today’s such ability achiever is Mrs. Ruth Sirisha James.

I would have hardly known Ruth if not for Bryn, in fact many wouldn’t have known her if NOT Bryn,

Bryn is Ruth’s first and special child, diagnosed with cerebral palsy and in spectrum of autism in understanding, Bryn’s development was the most tough yet sweet and purposeful part in Ruth’s entire life.

Now, today Bryn is 21 year old, on the eve of it and to celebrate Ruth, when I talked to her, it’s a wonderment from a women who did nothing but growing every moment with a special child and today made him special individual. I , rarely see Bryn today as a child and I don’t like the child tag for him anymore.. But what’s Bryn and how he has become from special, incapacitated and handicapped to special solely rests on Ruth and her husband’s shoulders.

Its easy to praise people who has done great things like Ruth .. but its so difficult to live their even for moment.

To be able to live and love the life that’s always at the loggerheads with meeting special needs of a person and normal needs of a teenage daughter ( Bryn has a sister Serena) and extra-ordinary needs of a touring husband ( however understanding he may be life James ) needs a super women energy, normal women empathy and god like patience.

RUTH IS ENDOEWED BY HER CHRIST WITH ALL THOSE THINGS.. WHICH ARE AS IMPORTANT IN BRYN’S DEVELOPME TOWARDS BEING A COMPASSIONATE INDIVDUAL AS IT CAN BE..!

Without wasting time.. lets see what Ruth says about her life and HER BRYN AND HER NEST WITH SERENA AND JAMES SIR

10154316_757891874241339_1246693127_n

1. What’s important to Bryan and YOU as a Team?

To me and the family it is of primary importance that he is treated with respect and love. At no stage should his mental well being be compromised.

2. When you first heard that Bryan is special, what was your reaction and how much time did it take for you to accept?

I first got to know that Bryan was special when he was 9 months old. By then I had a vague idea that something was grossly wrong. So when I was told I did not react much. I took it in my stride and continued taking care of him. However I think it really took me more than 6-7 years to actually truly accept the situation.

3. As a family, what does Bryan like to do most? What all the things he might wish to do as per you?

Bryan has always been very fond of music. He loves water so going down to a river or beach also is a fun activity for him. Travelling is another thing that he loves. But I’m sure if he is given an option he would love to do all three things together!

4. Having a special child at home is pretty unique and bizarrely special to anyone. How you deal with society on a daily basis?

Well I have always believed that we should be a model family to people looking at us. Taking care of a normal child in itself is a herculean task, but in comparison taking care of a special child is far easier in many ways. In Bryan’s case all he needs is loads and loads of love, and food to fill his tummy. Beyond that his demands are nil. I have always tried to make society aware of the fact that we can still be happy and loving inspite of everything. And yes, if anyone does ask me stupid questions like, “why did u not get an abortion done, or why don’t you put him in a home. Or, is he mental? I have an answer for them. Abortion? Are you asking me why I did not kill my child? A home? The least I can give Bryan is a loving home and the warmth of a family. And mental? He’s not any more mental than you are to ask me that question. Society can go take a hike frankly. I love my son and don’t care what others think!

5. Having a male child with cerebral palsy, in itself puts a lot of pressures on women as ours is patriarchal society. Did you face any such problems?

Yes, for a while. My in-laws wanted us to have a third child so that their family line would continue. I only had one answer for them. He is God’s chosen child for us we need not have another to continue the lineage. After that I have not face any trouble on this issue.

6. Given the chance, what are the things you wish to do with Bryan and kids like Bryan?

With Bryan, all I want to do is hug him close and never let him go. I want him to know that he is loved and wanted in the family. I wish I could do and say the same to all special kids. Hug them and tell them that they are God’s special envoys, sent to fill lives with happiness and not sorrow.

7. Describe Bryan in few sentences!( if possible ..LOL)

Bryan is a happy, naughty, mischievous, full of love child. I once said, “if Gods love is as tender as Bryan’s touch, as gentle as his kiss, has firm as his hug, then I have truly experienced Gods love in its fullest measure”. I don’t think anything else can describe Bryan more completely.

8. People associate lot of negativity when one child is diagnosed with disability and mental vulnerabilities… did you face any such wrath of negativity?

As always, people will be rude, harsh and insensitive towards parents with a special child. They don’t realize that more than the child it’s the parents who are severely challenged, trying to cope with the child and society. But in the end the patents positive attitude wins over all the negativity.

9. What’s the constant support to you in raising Bryan?

My immense faith in God, that HIS ways are perfect and so is Bryan. Physically at home, my husband and daughter are more than mother, father to him. Their love and understanding gives me strength to go on in life inspite of all the struggles that I face.

10. What do you expect or foresee as desirable future for Bryan?

AAhhh! I am a one day at a time person, so I have never really given his future a thought. To me if he is given love, and his needs are taken care of, then I don’t think I need more than that in life for him.

11. How does he respond to all kinds of people and emotions? Can you narrate any instances?

Bryan is my barometer with people. He is very sensitive to people who have genuine love and those who are just mingling with him for show sake. He loves to hug people and will on his own give a kiss once a while. He knows when someone is sad and also when they are happy. There was this phase when he was very hyper and he knew that I was troubled and perturbed about it. And so in all that hyper activity one day he just hugged me tight and kissed me. Probably his way of saying I’m sorry mom, but I really don’t know why I’m like this. Gut wrenching emotions!

12. What is it that you don’t like among people regarding the way they treat disability?

I hate the way people look and treat special kids as if they are abnormal aliens from outer space. The way they talk also reflects their negative attitude and also sometimes I feel they take it as a bad omen to have a special child and avoid all contact in every way possible.

13. How did you learn what you learn from Bryan? To put it differently what did you learn from Bryan?

I learned to love unconditionally. I learned not to judge. I learned to be patient and quiet. To not complain. To accept situations just the way they are. To reach out to people. To just get people to talk so that I cud know what is in their mind. I basically learned how to lead a complete life full of richness in experiences.

14. Raising a special child is huge task physically and emotionally too..! How do you handle fatigue and other stress associated with it.

I have learnt to ignore every physical, mental and emotional stress. No point giving importance to them coz life still has to go on!

15. What are the things you did to improve the learning curve of Bryan… can you narrate one or two instances?

With Bryan whatever we spoke or did was like a parrot repetition. Frankly there is not much that he can do, but yes the little that he does is appreciated and applauded and that has helped in his learning. We have learned to eliminate the word “no” from our vocabulary as we do not want negative emotions or words to affect his learning curve.

16. Parents of special children worry about what will happen to their child after them? Did it ever occur to you? Or what’s your answer to such insecurity?

I love this question. No I don’t worry. Like I said, I fully believe in a God who is in control of our lives. It’s this very same God who took care of him till now who will take care of him after me. I absolutely trust in HIM! Besides, does God not know what he was doing when He brought Bryan into this world? So, what do I achieve by worrying? Nothing!

17. Did you have any issues either positive or negative for the organizations or special schools that are run for these kids? What’s a mom’s point of view.

To be very very truthful, I am not appreciative of the schools that are being run here in Vizag. There needs to be a drastic change in the outlook of people, and also intensive training given to teachers working with special kids. Till such a time, I feel, schools are only generating more negativity in the family instead of being a support system to the family.

18. Do you wish to say any systemic changes regarding how this special kids to be rehabilitated

Yes! I would love to have a respite centre for special kids where families could leave their kids for a while and go enjoy themselves. I would also like to see good loving homes being developed that would ensure not only love and care but also genuine rehabilitation work being done in special children.

19. Tell me the role of your husband and daughter

My husband is a better mother and an extremely loving father to Bryan. Even though he is posted in a different place, every time he comes home, he takes on the complete responsibility of taking care of Bryan. The way they both play and cuddle up to each other is a sight to see.

My daughter has been my greatest blessing. She is second mom to Bryan and is constantly babysitting him. She feeds him, disciplines him (surprisingly he responds to her disciplining) and loves him a lot. She is happy to have him just the way he is and has never expressed the need to have a normal sibling.

20. Building up a network for special kids- how far you have come and what’s your vision?

Unfortunately I have not been able to network and meet with other parents who have special kids. I’m too much of an introvert to actually go out and meet with people and network with them. But yes, someday I hope that my life and my way of dealing with Bryan would be an inspiration and a source of strength to them. As for vision? I never really gave it a thought. But yes I believe that when all parents with special kids gather under one roof they can work wonders. Someday I hope we would be able to bring them under one roof and then take on from there!

Dearest Ruth… I remember you when I am down and depressed that I am unable to take bath or feeling week etc..

942252_592169090813619_1412440056_n

Life’s indeed fantabulous

Wiping out wet cheeks smoldered with child’s love,

Being with a naked love and affection

Wrapped so lovely just for you,

Making you mummy for the first time

You think you have given birth to bryn

In fact… he has given birth to

Your love, patience

Endless nights and relentless vigils

Never ending story of everyday

“ I love YOU’s “

In fact .. he has raised you

To a next level of humanity

With his sheer innocence

A sweaty handshake and

Salivated lovely kiss

He accepted your family’s love

Your god has chosen a secure home

With love nest and graceful acceptance

As foundation

Happy birthday Bryn.. be happy at always ..

Teach us living in NOW as always ..

We Love you.. We Love You

–Sai Padma

 

© Sai Padma ://IPR All Rights Reserved

Happy Anniversary Dear ‘V’ @6

DSC_2394_edited

 

The day started with divine blessings of Smt. Sita Lakshmi and Smt. Rao Bala Saraswathi, women who are inspiration to me ( ofcource, they are more fond of Anand) My family and cousins wishing Anand well for bearing a person like me ( inside they love me, outside they wish Anand only)

Our Hostel Students celebrating with Chicken and Laddu.

Prema Samajam , Vizianagaram Elders celebrated us with their elders. My father paid for their lunch and patronage as a marriage day gift for us.

A friend met first time, he is brother of another friend and willing to extend his support for kids with disabilities and elders

Blessings from all elders and friends, and lot of friends were wondering already 6 years over.

This year terribly missing two mothers, my mother and mother in law

Life is awesome with you Anand, I am feeling I just met you and started the journey with you.

Yes, I work lot, Sit a lot, need your help to do everything, I gorge on food, sometimes I don’t diet, fond of cloths and mobiles and technology.

Thanks for accepting my above disabilities with your love.

Yes, you are too disciplinarian, and have a particular value set, you focus on only one work at a time, never ambitious, forgetful regarding money, don’t like my multi-tasking at all, and skeptical of Facebook and Twitter..!!

I congratulate myself for accepting your above disabilities and include you… in this excitement called life.

HAPPY ANNIVERSARY BOTH OF US… DEAR…

May all beings be happy..!!

–Sai Padma

 

© Sai Padma :// IPR All Rights Reserved

Are You DISABLED by Choice/Choosing??

1690708_10201201707104748_1052467623_n

It’s a fact that, India still yet to accept the equality and inclusion of the Persons with Disabilities. UNCRPD (United Nations Convention on Rights of Persons with Disabilities) we follow… the present UPA government praises itself, but they forget the basic human rights.

A RIGHT OF A PERSON CAN NEVER BE A FAVOR DONE BY OTHERS, ITS AS NATURAL AS BREATHING, AS SPONTANEOUS AS LIVING.

I have seen governments and leaders going desperate over issues, parties and people fighting over whose credit it is, if something good happens … and who’s at fault when something goes wrong… well.. Here there is no such confusion.

Read the below news reports- which are reported delayed (everyone other than The Hindu) just opposite the house of Mr. Gandhi, Police beat activists who are peacefully protesting against the RPWD bill 2014 taking an ordinance route.

One activist and partially sighted Mr. Ram Karan Singh, a young lad of 23 years, and an Arjuna Awardee lost his eye sight. Means he can never participate in games again. There are slim chances of regaining the same level of vision again, but, what about the confidence he lost?

My question to many political leaders of this country … when you are pushing things by calling disability as minority, have you ever experienced these things?

  • Have you ever been in /imagine plight of a visually challenged person in a lathi charge… They don’t can’t see from where the lathi is coming and who is going to hit them! its like being beaten in the pitch dark , like being in closed doors..unaware of the direction of the target..!!
  • Have you ever lived the most helpless lives, when you are hungry and food is opposite you, but you can never lift a hand or even a finger to take a morsel and you wait for hours for a care-provider to come and feed you?
  • Have you thought about life in a wheelchair and their predicaments in a country like India, where they are at the mercy of their original, immediate families and friends
  • Have you been stranded and humiliated at public places for just being you… your gait, appearance which speaks more about your disability and frustration than ability?

My dear Mr. Politician …. You can play games with anyone, but you are playing with the most vulnerable community of all and potential vote bank. I am sure you will pay a heavy price.

My Dear Mr./Ms. Disability Activist…. Yes, it’s a fact that we need a lobby for our cause. But not a domineering leadership which is more interested in playing politics than working on policies and rights. When you distance yourself from the ground realities.. you lose the ground completely and forever.

Please read the following reports-

Arjuna Awardee Loses Sight in Police Action – ( UPA loses its vision completely )

http://www.thehindu.com/news/cities/Delhi/arjuna-awardee-loses-sight-in-police-action/article5739341.ece

Chief Commissioners Letter Urging Government to Stop the Ordinance Route – (We are still in begging mode for our rights, which is sad state of affairs)

http://www.business-standard.com/article/pti-stories/do-not-bring-ordinance-on-disability-rights-bill-ccpd-to-pm-114022800890_1.html

Paying heavy price and getting so little is not new to disability community… MY URGE IS THAT LETS NOT MAKE IT A HABIT OF SETTLING FOR LESS AND SETTLING TOO SOON ..!!

My sincere thanks to Everyone from different abilities and disabilities who are working assertively. Being assertive is the need of the hour.

I remember today Sri. Rahul Cherian and Ms. Amba Salelkar of Inclusive Planet who has been tirelessly working on this issue.. Carrying the legacy left by Rahul

And FINALLY HERE’S A CHALLENGE TO ALL… GIVE THE RIGHT ..RIGHT RIGHT BILL , NOT THE WATERED DOWN VERSION AND NOT AN ORDINANCE AND WE WILL GIVE YOU VOTES..!!

HERE ALSO, YOU ARE AT SAFE SIDE … WHAT SAY YOU POLITICAL PARTY …??

 

© Sai Padma :// IPR All Rights Reserved

Blog at WordPress.com.

Up ↑